O little town of Bethlehem,
How still we see thee lie!
Above thy deep and dreamless sleep
The silent stars go by.
Yet in thy dark streets shineth
The everlasting Light;
The hopes and fears of all the years
Are met in thee to-night.
And what a year it has been. So much hope. So much fear. Dreamless sleep and all.
January always begins with Azrielle beginning a new chapter in her life. It also met us with the closing of the book regarding her wierd episodes that later that month we determined were seizures…likely caused by the UTI that she had experienced in her second year of life. Infection can cause all sorts of long-term issues – seizures being one of them. If you ever need to get to UMass Worcester, we can show you the way! So many specialist, so many appointments…ruling one thing out and then another. We had an in-hopsital EEG done, and then an at home “walking EEG’. Both tests came back showing no signs of seizure activity. As long as she made is 6 months without experiencing another seizure, she should be fine. The human body is an amazing work of art that God created. And finally this medical chapter in our life was closed.
February and March dragged on as winter did not want to leave us this year. March also met us with a new milestone – Kreade sleeping through the night! And finally the happy boy we always dreamed was inside him began to emerge.
O morning stars, together
Proclaim the holy birth!
And praises sing to God the King,
And peace to men on earth.
For Christ is born of Mary
And gathered all above,
While mortals sleep the Angels keep
Their watch of wondering love.
And there was peace in our corner of the earth. And finally some sleep. April rolled around and the emerging happy boy turned 1. We celebrated with family and moved on to enjoy Easter. With Kreade becoming increasingly happy, I began to start thinking about graduate programs. Something just kept tugging on my heart to continue my seemingly life-long college journey. But God puts dreams in our hearts for a reason, and after a few months of trying to ignore the longing, I gave in to the dream and began searching out colleges and programs. Graduate programs are hard to nail down! Perhaps it’s just that my undergrad work is in psychology – which offers a variety of graduate options. I prayed everyday that God would help me to know which program was “the one”. My mind kept going back to one: Southern New Hampshire University offers and online program specializing in Child & Adolescent Developmental Psychology. Yep. Right up my alley. So I applied, and was accepted, and we began to plan for the start of my first course.
May began with the ending of my school year and the beginning of our camping year. Both of the kids just really LOVE camping. We are so happy to have our camper, and thankfully God allowed us the use of a truck as we had sold Klayton’s earlier in the year. Yes, May was good.
How silently, how silently,
The wondrous gift is given;
So God imparts to human hearts
The blessings of His Heaven.
No ear may hear His coming,
But in this world of sin,
Where meek souls will receive Him still,
The dear Christ enters in.
But alas, the goodness never seems to last. Towards the end of the month, Kreade caught a mild cold. Well, that mild cold turned into something much worse: croup. Which apparently is common in kids his age, Ellie never really even had a cold, so I never imagined. We were on the phone with the doctor in the middle of the night, in the office the next morning, beginning a steroid that same day. Spent a night and a day at home, and ended up in the ER on Friday afternoon. Meanwhile the chickens were getting huge and needed to be moved to their coup, which still needed renovations, spring yard work was piling up since winter had lingered so long, and the to-do list was mounting in its usual fashion. About a minute after walking in to the ER we were quickly given a room. About a minute later there were 2 doctors, 2 nurses, and a respiratory specialist in the room with us. Poor buddy boy was having great difficulty breathing, had chest retractions, and was a congested croupy mess. We ended up staying the night in the hospital. Another kind of steroid later, home we went. It took about a week for the croup to completely go away…and we were very tired of ER trips and doctors appointments and worrying about sick kids.
And then one morning Kreade woke up crankier than ever. He began vomiting and had a diarrhea diaper just about every hour. I took his temp and it was 104.5. Yep. Time to freak out. The doctor didn’t even give me an appointment. They said to just go. Go now. A dose of Tylenol and ibuprofen later his fever came down to around 101. We spent a few hours just sitting at the doctors office…watching. During that time we noticed there was blood in the diarrhea. Great. Well, lets run some tests and see what could be up. Home we went. Only to end up the the ER the next afternoon because buddy boy was crying and no tears were coming out of his sad little eyes. He was so dehydrated! But we just couldn’t get him to drink anything; never mind eat. He slowly began to improve. The ER trip was on Wednesday. I remember where we parked. On Sunday, we got a call from the doctor. Kreade had salmonella. All I could think was: how?! We were at the doctor the next morning.
The following Friday, Ellie had an interesting bowel movement. Black and sticky. We didn’t think much of it until we noticed blood in her stool the very next day. She had a low temp on Sunday, and we debated another trip to the ER. Our doctor advised us to monitor her, and told us to come in first thing Monday. I love our doctor. As my sister says, she is seriously the bomb.com.
More appointments. More blood-work. More tests.
By July we had met with a pediatric GI. Ellie did a clean out, and we began a maintenance dose of Miralax. Thank God, she was finally passing her stools without pain, and we didn’t notice any more blood. After a couple more appointments with the specialist, she felt confident that Chron’s or colitis were unlikely. Finally, nothing but well-child checks for 6 months.
In between doctor appointments, we went camping. I think it worked out something like ER one weekend, camping the next. And we camped about every two to three weekends. We so enjoyed these trips! My mom and sisters were even able to come along to Cape Cod with us. We traveled to the White Mountains, to Old Orchard Beach, and several other lovely places.
Where children pure and happy
Pray to the blessed Child,
Where misery cries out to Thee,
Son of the Mother mild;
Where Charity stands watching
And Faith holds wide the door,
The dark night wakes, the glory breaks,
And Christmas comes once more.
Meanwhile, I had begun my first graduate course. It felt so good to resume learning. I so just love school. And thank God for Klayton’s job. Seriously. I don’t know what we would’ve done without it. So many times when I needed to get to the ER, Klayton was only five minutes away and able to come with me. Other times when I had to take one kid for a last minute appointment, the other kid was able to go and hang out with daddy at work. We prayed a really long time that God would show Klayton what he was supposed to do for the rest of his life, for a job that was family friendly, and something that Klayton enjoyed. Well, I guess good things really do come to those who wait. Klayton is going on a year and a half at Triumph Interiors, and neither of us could be happier. We are really both so grateful for his job, and the Christ-centered workplace that it is.
Finally, around September, Kreade’s bowel movements resumed normal toddler consistency. We had been having him tested routinely to monitor the salmonella levels, as it can be carried in the gut and stool for a month to a year. He carried the bacteria for a good four and a half months. And finally it was gone! Truly, the dark night wakes and glory breaks.
I went back to work just before Labor Day, and began what has turned out to be a rough year. So much heartache and so much pain – the world is just so full of hurting people and children. It feels like whatever I do, it is never enough.
Klayton has been oh so busy. We really fell behind with the to-do list that life produces with so many sick kids and ER visits. And then the engine on the new-to-us truck went in July. On 495. On our way home from the Cape. Extra bills means extra work, and poor Klayton has been so busy. We just kept trying to remind ourselves that God has a plan, amidst the sickness, and with the truck.
After Thanksgiving, Ellie had another x-ray just to make sure that her bowels were working the way they should. Well, they weren’t. In fact, her colon was so full of fecal matter that there was no room for free air. I almost cried when the doctor called me to let me know. She had been having a bowel movement every day! Why, why, why? We did another clean out and see the GI in January again.
And here we are.
I love looking back.
I did one of those “your most used words” on Facebook. You might have guessed, it was DOCTOR. It seems like the story of our year. Literally, I don’t think a month went by, never mind a week where we weren’t at the doctor. From seizures, to salmonella, and digestive issues – we’ve done it all.
And yet, I wouldn’t trade any of it. Well, maybe the salmonella. That was horrific.
Life is hard people. Life is really hard. It’s stressful. There never seems to be enough money. Trucks break. Kids get sick. The to-do list never gets done. You forget to have your car inspected. Forget to pay the cell phone bill. Don’t remember the milk when you go grocery shopping. I guess life is just full of crap sometimes – in our case, one of us is literally full of crap. Yes, life is hard.
But it’s when you’re in the depths of despair, when you think that you can’t handle one more doctor appointment, one more bill, one more trip to the grocery store…and God finds you.
O holy Child of Bethlehem,
Descend to us, we pray!
Cast out our sin and enter in,
Be born in us to-day.
We hear the Christmas angels,
The great glad tidings tell;
O come to us, abide with us,
Our Lord Emmanuel!
This year, looking back, I am struck by His faithfulness. His provision. His deliverance. And even though life is hard, our hearts know the love that was born in us. Today, and everyday, we live in the promise that the Christmas angels told…He has come to us, he abides in us, our Lord Emmanuel.
Yes. God is with us. Everyday. Through it all. And He always will be.
And even though it has been a hard, hard year…we know that He was with us, and will be forevermore.
Praying that your hearts accept the holy Child, and allow Him to cast out all sin and enter in so that He can abide with you too. And if your heart already knows the faithfulness of our savior, remember, the great glad tidings tell.
Klayton, Alicia, Azrielle, and Kreade